Radiology: Von Hippel Lindau Disease
Von Hippel Lindau Disease: Genetic, Clinical and Imaging Features Peter L. Choyke, M.D., Gladys M. Glenn, M.D., Ph.D., McClellan M. Walther, M.D., Nicholas J. Patronas, M.D., W. Marston Linehan, M.D., Berton Zbar, M.D. Radiology (March) 146:629-642, 1995 Table of Contents Abstract History Clinical Manifestations Genetics Retina Hemangioblastomas CNS Hemangioblastomas Endolymphatic Sac Tumors ...
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VHL: A Genetic Disease
"It was like a bowling ball hitting us in the face, " said Vicki. She was referring to the moment when she and her sisters learned that they may all have inherited a gene that could give them VHL, the disease that had killed their oldest sister Lydia. Lydia had been sickly throughout her childhood. Vicki, Mary, and Charlotte had been fine as kids. But in their thirties and shortly after they ...
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Von Hippel-Lindau Syndrome
Von Hippel-Lindau Syndrome Who to Contact Where to Go to Chat with Others Learn More About It Web Sites Who to Contact VHL Family Alliance 171 Clinton Road Brookline, Massachusetts, USA 02146 (617) 232-5946 (800) 767-4VHL Fax: (617) 734-8233 e-mail: vhl@pipeline.com VHL (Von Hipple-Lindau Disease) Family Alliance's mission is to improve diagnosis, treatment, and quality of life for people with ...
www.familyvillage.wisc.edu/lib_vonh.htm reviews
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