The Children's Medical Research Foundation, Inc. was formed by Kirby's parents in 1995 to fund medical research and find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. To date, the not-for-profit Foundation has funded research at seven universities, with more than 95% of all receipts appropriated to fund research.

We invite you to explore our website to learn more about Benjamin, Sanfilippo Syndrome, the Foundation, our efforts and how you can help.

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Disorder Zone Archives Sanfilippo Syndrome Introduction Sanfilippo syndrome is a rare genetic disorder characterized by mental deterioration, mild physical defects, and behavioral problems. Sanfilippo syndrome, also considered a genetic error of metabolism, is a mucopolysaccharide disorder and is referred to as MPS - III. Mucopolysaccharides are long chains of sugar molecules which are used in ...