Shwachman-Diamond America is a nonprofit that educates physicians, families and the general public about various aspects of SDS. Shwachman-Diamond Syndrome is the second most common cause of pancreatic insufficiency (CF is the first). SDS also includes bone marrow dysfunction.

Information on dealng with Cholera, in Marshallese, and English.

The National Ambulatory Hernia Institute provides information for the layperson and physicians.